President and Founder
"My daughter, Bria has TANGO2 and I am committed to improving her life as well as others suffering with this disease"
Treasurer
Vice President
Director
Director
Director
We work with the TANGO2 Research Foundation to support families and patients across the world.
Our community is full of people who want to help. We work to help the people providing services with the people who need them.
Bria. For the longest time we had no idea what caused Bria's 'episodes', the first of which was at the age of 4 months. We had spent the subsequent months/years battling back from that. Bria experienced low blood sugar, high CPK and lactate levels, high Ketone levels, brain damage, enlarged kidneys, prolonged QT, Hypothyroidism, uncontrolled seizures, suffered 2 comas, 15 total days on life support, has had feeding tubes, mounds of medications and lots of long hospital stays. Bria has overcome so much. She still takes thyroid medication, a cocktail of supplements and has numerous medical appointments and therapies. Bria has cognitive and developmental delays. Bria has significant speech delays and although Bria walks, she struggles with balance issues and gait abnormalities. Those are the medical pieces of Bria which seem hard to believe when you meet her. Bria as an individual is much more. She is funny and makes herself and others laugh frequently. She is full of life and has a beautiful way about her, both inside and out. She loves her pets and her family, especially her brother Braxton and is extremely engaged when meeting new people. She studies those around her and works very hard to overcome her challenges daily. Bria takes therapeutic horse riding lessons and it has helped her to walk and build her confidence. Bria displays an everlasting luster to pursue happiness daily. It is this that motivates us to help her and others like her in their journey.
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